Web Survey Bibliography
Title Development of a Pain and Discomfort Module for Use with the WHOQOL-100
Author Mason, V. L., Skevington, S. M., Osborn, M.
Source Quality of Life Research, 13, 6, pp. 1139-1152
Database Kluwer Journals
Access date 20.07.2004
Abstract Clinicians and researchers have become increasingly interested in the impact of chronic pain (CP) on quality of life (QoL). This report describes the qualitative stages of developing a pain and discomfort module for persons with CP to be used with the UK World Health Organisation generic measure of quality of life (WHOQOL). The aims were to investigate patients' perceptions of CP and its effect on QoL, and to generate items to be used in the development of a module appended to the UK WHOQOL-100. At the first stage (study 1), six focus groups of patients were invited to discuss how living with pain and discomfort affected QoL. At the second stage (study 2), an international web-survey was conducted with English-speaking respondents. 10 new facets of QoL were identified by the focus groups: flare-ups, pain relief, anger and frustration, vulnerability/fear/worry, uncertainty, loss/loneliness/feeling alone, positive strategies, communication, guilt and burdening others, and relationship with health-care providers. The web-survey confirmed and validated these new facets. Although the WHOQOL-100 is a reliable and valid measure of QoL for use in CP, this study shows that additional areas must be assessed when measuring the impact of CP on QoL.
Access/Direct link Kluwer Journals (full text)
Bibliographic typeJournal article
Year of publication2004
Web Survey Bibliography - Quality of Life Research (7)
- Kids' Life and Times: using an Internet survey to measure children's health-related quality...; 2011; Lloyd, K.
- The impact of next and back buttons on time to complete and measurement reliability in computer-based...; 2010; Hays, R. D. et al.
- Feasibility, reliability, and validity of adolescent health status measurement by the Child Health Questionnaire...; 2006; Raat, H., Mangunkusumo, R. T., Landgraf, J. M., Kloek, G., Brug, J.
- Development of a Pain and Discomfort Module for Use with the WHOQOL-100; 2004; Mason, V. L., Skevington, S. M., Osborn, M.
- The effect of different methods of collecting data: Mail, telephone and filter data collection issues...; 2003; Hawthorne, G.
- The reliability and internal consistency of an Internet-capable computer program for measuring utilities...; 2000; Lenert, L. A.
- Feasibility of quality-of-life research on the Internet: A follow-up study; 1999; Treadwell, J. R., Soetikno, R. M., Lenert, L. A.