Web Survey Bibliography
Title Transition programs in cystic fibrosis centers: Perceptions of team members
Author Flume, P. A., Taylor, L. A., Anderson, D. L., Gray, S., Turner, D.
Source Pediatric Pulmonology, 37, 1, pp. 4-7
Database Willey InterScience
Access date 19.11.2004
Abstract We previously surveyed cystic fibrosis (CF) center directors and adult patients with CF to assess their perceptions regarding transition from a pediatric to an adult setting. An important finding in those studies was a lack of standard programs for transfer of young adults with CF from pediatric to adult care settings. Patients with CF typically receive care from clinics utilizing a multidisciplinary approach, suggesting that every member of the CF team can impact the transition process. Our purpose in this study was to gain an appreciation for various team members' perspectives on transition. An Internet survey was offered to all CF centers across the country to be completed by team members, excluding physicians. We received 291 completed surveys, nearly half completed by nurses, but our respondents included social workers, nutritionists, respiratory therapists, and a few team members with other training. Nearly half of the respondents work for both pediatric and adult teams. The majority of respondents (71.8%) reported that their adult patients receive care from an internist in a separate adult program, but nearly 20% reported that a pediatrician follows their adult patients. A minority thought that age (37.4% of respondents), marriage (16.2%), and pregnancy (27.1%) were criteria for transfer, though most (86.2%) suggested that patients should be transferred by age 21 years. Criteria precluding transfer included patient/family resistance (45%), disease severity (34%), and developmental delay (31.3%). It was uncommon (11.4%) for an introduction to the concept of transition at the time of diagnosis. Over one-half of patients did not meet the adult team until time of transfer. Team members' perceptions of patients' concerns were similar to what we had previously measured in physicians, again far greater than what we have measured in patients themselves. In many ways, what we have measured here in team members reflects what we have reported by physicians, demonstrating slow development of standard transition programs and an overestimate of patients' concerns regarding transition. These differences may impede the successful transition of patients into an adult program. It is clear from this study that team members have an interest in and opinions on transition, and are likely play a vital role in the transition process. Standard programs of transition should be developed, and team members should be engaged in that process.
Access/Direct link Wiley InterScience (full text)
Year of publication2004
Bibliographic typeJournal article
Web Survey Bibliography - Health (444)
- Internet‐ vs. telephone‐administered questionnaires in a randomized trial of smoking cessation...; 2006; Graham, A. L., Papandonatos, G. D., Bock, B. C., Cobb, N. K., Baskin‐Sommers, A., Niaura, R.,...
- Web-based data collection: detailed methods of a questionnaire and data gathering tool; 2006; Cooper, C. J., Cooper, S. P., del Junco, D. J., Shipp, E. M., Whitworth, R., Cooper, S. R.
- Conducting Intensive Interviews Using Email; 2006; McCoyd, J. L. M., Schwaber Kerson, T.
- Why Choice of Survey Mode Makes a Difference; 2006; Dillman, D. A.
- Complementing Random-Digit-Dial Telephone Surveys term with Other Approaches to Collecting Sensitive...; 2006; Galesic, M., Tourangeau, R., Couper, M. P.
- Web Survey Design: Paging versus Scrolling; 2006; Peytchev, A., Couper, M. P., McCabe, S. E., Crawford, S. D.
- A online-offline method comparison based on quasi-experimental data from two surveys to family stress...; 2006; Haenggi, Y., Heldner, C.
- Internet research in an international context; 2006; Baernholdt, M., Clark, S. P.
- Computer-assisted questionnaires may facilitate collection of quality-of-life (QOL) data: At a cost; 2006; Smith, A. B., Velikova, G., Wright, E. P., Lynch, P., Selby, P. J.
- Web-Based Questionnaires and the Mode Effect: An Evaluation Based on Completion Rates and Data Contents...; 2006; Denscombe, M.
- Formative Evaluation and Three-Month Follow-Up of an Online Personalized Assessment Feedback Intervention...; 2006; Cunningham, J. A., Humphreys, K., Kypri, K., van Mierlo, T.
- Comparing web and mail responses in a mixed mode survey in college alcohol use research; 2006; McCabe, S. E., Diez, A., Boyd, C. J., Nelson, T. F., Weitzman, E. R.
- Measuring health beliefs on the Internet: A comparison of paper and Internet administrations of the...; 2006; Hewson, C. M., Charlton, J. P.
- Telephone and Web: The Mixed-mode Challenge; 2006; Speize, H., Baker, R. P., Wiitala, W., Greene, J.
- Comparison of Web and mail surveys for studying secondary consequences associated with substance use...; 2006; McCabe, S. E., Couper, M. P., Cranford, J. A., Boyd, C. J.
- Developing and validating a nursing website evaluation questionnaire; 2005; Tsai, S. - L., Chai, S.-K.
- Computer adaptive testing; 2005; Gershon, R. C.
- Survey of substance use among high school students in Taipei: Web-based questionnaire versus paper-and...; 2005; Wang, Y. C., Lee, C. M., Lew-Ting, C. Y., Hsiao, C. K., Chen, W. J.
- E-mail versus Web survey response rates among health education professionals; 2005; Kittleson, M. J., Brown, S. L.
- Effects of Survey Mode on Self-Reports of Adult Alcohol Consumption: A Comparison of Mail, Web and Telephone...; 2005; Link, M. W., Mokdad, A.
- Effects of survey mode, gender, and perceived sensitivity on the quality of data regarding sensitive...; 2005; Mi Kyung, J.
- Sexual and Relationship Characteristics Among an Internet-Based Sample of U.S. Men with and without...; 2005; Cameron, A., Rosen, R. C., Swindle, R. W.
- Using Computer Games Design to Increase Response Rates; 2005; Baelter, O.
- Alternative Modes for Health Surveillance Surveys: An Experiment with Web, Mail, and Telephone; 2005; Link, M. W., Mokdad, A.
- Is a Web survey as effective as a mail survey? A field experiment among computer users; 2005; Kiernan, N. E., Kiernan, M., Oyler, M. A., Gilles, C.
- Benefits of participating in Internet interviews: Women helping women; 2005; Beck, C. T.
- Online Research: Online research captures audience insight, competitive data; 2005; Hirt-Marchand, J.
- Online Research Displacing Phone and Mail Methods.; 2005; Anonymous
- Preliminary validation of a hope scale for a rare health condition using web-based methodology; 2005; Vernberg, D., Snyder, C. R., Schuh, M.
- Information Needs and Visitors' Experience of an Internet Expert Forum on Infertility; 2005; Himmel, W., Meyer, J., Kochen, M. M., Michelmann, H.-W.
- How New Subscribers Use Cancer-Related Online Mailing Lists; 2005; Rimer, B. K., Lyons, E. J., Ribisl, K. M., Bowling, J. M., Golin, C. E., Forlenza, M. J., Meier, A.
- Use of Internet Audience Measurement Data to Gauge Market Share for Online Health Information Services...; 2005; Wood, F. B., Benson, D., LaCroix, E.-M., Siegel, E. R., Fariss, S.
- There Is Hope for the Future: National Survey Results Reveal that Geriatric Medicine Fellows Are Well...; 2005; Pan, C. X., Carmody, S., Leipzig, R. M., Granieri, E., Sullivan, A., Block, S. D., Arnold, R. M.
- Evaluation of surgical margins in melanocytic lesions: a survey among 152 dermatopathologists; 2005; Sellheyer, K., Bergfeld, W. F., Stewart, E., Roberson, G., Hammel, J.
- Web-based and Mailed Questionnaires: A Comparison of Response Rates and Compliance; 2005; Baelter, K., Balter, O., Fondell, E., Trolle-Lagerros, Y.
- Using a web-based survey to assess correlates of intention towards HIV testing among never-been-tested...; 2005; Hou, S.-I., Wisenbaker, J. M.
- Smoking Cessation Research via the Internet: A Feasibility Study; 2005; Stoddard, J. L., Delucchi, K. L., Muñoz, R. F., Collins, M., Pérez-Stable, E. J., Augustson,...
- Biases in internet sexual health samples: Comparison of an internet sexuality survey and a national...; 2005; Ross, M. W., Mansson, S.-A., Daneback, K., Cooper, A., Tikkanen, R.
- Analysis of Break-off Patterns in Web Surveys; 2005; Ahsan, S., Broach, R. J.
- Evaluation of Noise-Induced Hearing Loss in Young People Using a Web-Based Survey Technique.; 2005; Chung, J. H., des Roches, C. M., Meunier, J., Eavey, R. D.
- The psychometric properties of pen-and-pencil and internet versions of the midlife women's symptom index...; 2005; Im, E. O., Chee, W., Bender, M., Cheng, C.- Y., Tsai, H.- M., Kang, N. M., Lee, H. S.
- An overview of the ethics of cyber-space research and the implication for nurse educators; 2005; Haigh, C., Jones, N. A.
- Demands on web survey tools for epidemiological research; 2005; Baelter, O., Baelter, K.
- Challenges of Internet Recruitment: A Case Study with Disappointing Results; 2005; Koo, M., Skinner, H.
- Challenges in conducting longitudinal randomized controlled trials online - The story of evaluating...; 2005; Davidovich, U.
- Adjusting for selection bias in Web surveys using propensity scores: the case of the Health and Retirement...; 2005; Schonlau, M., van Soest, A., Kapteyn, A., Couper, M. P.
- Internet-administered adolescent health questionnaires compared with a paper version in a randomized...; 2005; Mangunkusumo, R. T., Moorman, P. W., van den Berg -de Ruiter, A. E., van der Lei, J., de Koning, H....
- Mode effects for collecting alcohol and tobacco data among 3rd and 4th grade students: A randomized...; 2005; McCabe, S. E., Boyd, C. J., Young, A., Crawford, S. D., Pope, D.
- An experiment in call scheduling; 2004; Cunningham, P., Martin, D., Brick, J. M.
- A household panel as a tool for cost-effective health-related population surveys: validity of the "...; 2004; Potthoff, P., Heinemann, Lothar A.J., Guther, B.