Web Survey Bibliography
Title Transition programs in cystic fibrosis centers: Perceptions of team members
Author Flume, P. A., Taylor, L. A., Anderson, D. L., Gray, S., Turner, D.
Source Pediatric Pulmonology, 37, 1, pp. 4-7
Database Willey InterScience
Access date 19.11.2004
Abstract We previously surveyed cystic fibrosis (CF) center directors and adult patients with CF to assess their perceptions regarding transition from a pediatric to an adult setting. An important finding in those studies was a lack of standard programs for transfer of young adults with CF from pediatric to adult care settings. Patients with CF typically receive care from clinics utilizing a multidisciplinary approach, suggesting that every member of the CF team can impact the transition process. Our purpose in this study was to gain an appreciation for various team members' perspectives on transition. An Internet survey was offered to all CF centers across the country to be completed by team members, excluding physicians. We received 291 completed surveys, nearly half completed by nurses, but our respondents included social workers, nutritionists, respiratory therapists, and a few team members with other training. Nearly half of the respondents work for both pediatric and adult teams. The majority of respondents (71.8%) reported that their adult patients receive care from an internist in a separate adult program, but nearly 20% reported that a pediatrician follows their adult patients. A minority thought that age (37.4% of respondents), marriage (16.2%), and pregnancy (27.1%) were criteria for transfer, though most (86.2%) suggested that patients should be transferred by age 21 years. Criteria precluding transfer included patient/family resistance (45%), disease severity (34%), and developmental delay (31.3%). It was uncommon (11.4%) for an introduction to the concept of transition at the time of diagnosis. Over one-half of patients did not meet the adult team until time of transfer. Team members' perceptions of patients' concerns were similar to what we had previously measured in physicians, again far greater than what we have measured in patients themselves. In many ways, what we have measured here in team members reflects what we have reported by physicians, demonstrating slow development of standard transition programs and an overestimate of patients' concerns regarding transition. These differences may impede the successful transition of patients into an adult program. It is clear from this study that team members have an interest in and opinions on transition, and are likely play a vital role in the transition process. Standard programs of transition should be developed, and team members should be engaged in that process.
Access/Direct link Wiley InterScience (full text)
Bibliographic typeJournal article
Year of publication2004
Web Survey Bibliography - Health (468)
- Using the Web for Surveys of Medical Providers; 2007; Narayanan, V., Giambo, P., Fry, S., Crafts, J.
- Response rate and completeness of questionnaires: A randomized study of internet versus Paper-and-Pencil...; 2007; Holm- Christensen, K., Hjollund, H. N., , ; Basnov, M.; Kongsved, S.M.
- Following Up Nonrespondents to an Online Weight Management Intervention: Randomized Trial Comparing...; 2007; Couper, M. P., Peytchev, A.; Strecher, V., Rothert, K., Anderson, K. J.
- Web Surveying and Health Risk Behaviour: Preliminary Results from an Irish College Study; 2007; Delaney, L., Harmon, C., Wall, P.
- The Use of Web Surveys in the UK Household Longitudinal Study; 2007; Jaeckle, A., Laurie, H., Lynn, P.
- Measuring Childhood Health Histories over the Internet ; 2007; Smith, J. H.
- Measuring Time Preference and the Elasticity of Intertemporal Substitution with Web Surveys; 2007; Sahm, C. R., Kimball, M. S., Shapiro, M. D.
- The Quality of Subjective Probability Data in the HRS: CAPI, CATI, and Internet Interviews; 2007; Dominitz, J., Hurd, M. D., Kapteyn, A.
- Are ‘Webographic' or Attitudinal Questions Useful for Adjusting Estimates from Web Surveys Using...; 2007; Schonlau, M., van Soest, A., Kapteyn, A.
- Mixing Web and Mail Methods in a Survey of Physicians; 2007; Beebe, T. J., Locke, G. R., A., Davern, M. E., Anderson, K. J.Barnes, S. A.
- Combining Cell Phone and Landline Samples: Dual Frame Approach.; 2007; ZuWallack, R. S.
- Sampling Bias in an International Internet Survey of Diversion Programs in the Criminal Justice System...; 2007; Hartford, K., Carey, R., Mendonca, J.
- Psychological Assessment via the Internet: A Reliability and Validity Study of Online (vs Paper-and-...; 2007; Vallejo, M. A., Jordán, C. M., Díaz, M. I., Comeche, M. I., Ortega, J.
- Internet and written respiratory questionnaires yield equivalent results for adolescents; 2007; Raat, H.,Mangunkusumo, R. T., Mohangoo, A. D., Juniper, E. F., Van Der Lei, J.
- Social desirability effects on computerized and paper-and-pencil questionnaires; 2007; Booth-Kewley, S., Larson, G. E., Miyoshi, D. K.
- Noncoverage and nonresponse in an Internet survey; 2007; Couper, M. P., Kapteyn, A., Schonlau, M., Winter, J.
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- Order effects in batteries of questions; 2006; Siminski, P.
- Feasibility, reliability, and validity of adolescent health status measurement by the Child Health Questionnaire...; 2006; Raat, H., Mangunkusumo, R. T., Landgraf, J. M., Kloek, G., Brug, J.
- Telephone coverage and health survey estimates: evaluating the need for concern about wireless substitution...; 2006; Blumberg, S. J., Luke, J. V., Cynamon, M. C.
- Methodologic challenges of e-health research; 2006; Bowling, J. M., Rimer, B. K., Lyons, E. J., Golin, C. E., Frydman, G., Ribisl, K. M.
- Internet‐ vs. telephone‐administered questionnaires in a randomized trial of smoking cessation...; 2006; Graham, A. L., Papandonatos, G. D., Bock, B. C., Cobb, N. K., Baskin‐Sommers, A., Niaura, R.,...
- Web-based data collection: detailed methods of a questionnaire and data gathering tool; 2006; Cooper, C. J., Cooper, S. P., del Junco, D. J., Shipp, E. M., Whitworth, R., Cooper, S. R.
- Conducting Intensive Interviews Using Email; 2006; McCoyd, J. L. M., Schwaber Kerson, T.
- Why Choice of Survey Mode Makes a Difference; 2006; Dillman, D. A.
- Complementing Random-Digit-Dial Telephone Surveys term with Other Approaches to Collecting Sensitive...; 2006; Galesic, M., Tourangeau, R., Couper, M. P.
- Web Survey Design: Paging versus Scrolling; 2006; Peytchev, A., Couper, M. P., McCabe, S. E., Crawford, S. D.
- A online-offline method comparison based on quasi-experimental data from two surveys to family stress...; 2006; Haenggi, Y., Heldner, C.
- Internet research in an international context; 2006; Baernholdt, M., Clark, S. P.
- Computer-assisted questionnaires may facilitate collection of quality-of-life (QOL) data: At a cost; 2006; Smith, A. B., Velikova, G., Wright, E. P., Lynch, P., Selby, P. J.
- Web-Based Questionnaires and the Mode Effect: An Evaluation Based on Completion Rates and Data Contents...; 2006; Denscombe, M.
- Formative Evaluation and Three-Month Follow-Up of an Online Personalized Assessment Feedback Intervention...; 2006; Cunningham, J. A., Humphreys, K., Kypri, K., van Mierlo, T.
- Comparing web and mail responses in a mixed mode survey in college alcohol use research; 2006; McCabe, S. E., Diez, A., Boyd, C. J., Nelson, T. F., Weitzman, E. R.
- Measuring health beliefs on the Internet: A comparison of paper and Internet administrations of the...; 2006; Hewson, C. M., Charlton, J. P.
- Telephone and Web: The Mixed-mode Challenge; 2006; Speize, H., Baker, R. P., Wiitala, W., Greene, J.
- Developing and validating a nursing website evaluation questionnaire; 2005; Tsai, S. - L., Chai, S.-K.
- Computer adaptive testing; 2005; Gershon, R. C.
- Survey of substance use among high school students in Taipei: Web-based questionnaire versus paper-and...; 2005; Wang, Y. C., Lee, C. M., Lew-Ting, C. Y., Hsiao, C. K., Chen, W. J.
- E-mail versus Web survey response rates among health education professionals; 2005; Kittleson, M. J., Brown, S. L.
- Effects of Survey Mode on Self-Reports of Adult Alcohol Consumption: A Comparison of Mail, Web and Telephone...; 2005; Link, M. W., Mokdad, A.
- Effects of survey mode, gender, and perceived sensitivity on the quality of data regarding sensitive...; 2005; Mi Kyung, J.
- Sexual and Relationship Characteristics Among an Internet-Based Sample of U.S. Men with and without...; 2005; Cameron, A., Rosen, R. C., Swindle, R. W.
- Using Computer Games Design to Increase Response Rates; 2005; Baelter, O.
- Alternative Modes for Health Surveillance Surveys: An Experiment with Web, Mail, and Telephone; 2005; Link, M. W., Mokdad, A.
- Is a Web survey as effective as a mail survey? A field experiment among computer users; 2005; Kiernan, N. E., Kiernan, M., Oyler, M. A., Gilles, C.
- Benefits of participating in Internet interviews: Women helping women; 2005; Beck, C. T.
- Online Research: Online research captures audience insight, competitive data; 2005; Hirt-Marchand, J.
- Online Research Displacing Phone and Mail Methods.; 2005; Anonymous
- Preliminary validation of a hope scale for a rare health condition using web-based methodology; 2005; Vernberg, D., Snyder, C. R., Schuh, M.