Web Survey Bibliography
There are many uncommon conditions in the United States, which are largely unstudied outside of clinical settings. The prevalence rates of these conditions are too low to be represented in even the largest health surveys. Consequently, there are no reliable estimates of the prevalence, disease or treatment characteristics of these populations. The population prevalence for one such condition – primary immune deficiency disease – was established by a national RDD telephone survey of 10,000 households in 2005. This survey identified 23 individuals with legitimate diagnoses of primary immune deficiency diseases out of approximately 28,000 persons in these households. The household sample yielded a precise estimate of the prevalence of these diagnoses in the United States, but the patient sample was too small to reliably characterize the disease and treatment. The current study used a large national Census-balanced online panel as an alternative approach to obtaining a larger, community based sample of patients with a rare disease. A total of 850,000 unique panelists were sent generic invitations to participate in a survey. Ultimately, the online panel produced a total of 159 respondents (with 174 qualifying patients in the household or immediate family) who met the diagnostic criteria for inclusion in the study. This survey provided the first national, community based estimates of the treatment of this rare disease with a large enough sample for reliable estimates. The findings from the non-probability online survey were remarkably consistent with those from the small, but probability prevalence survey. Although no substitute for probability samples, this study suggests that online panels may play a useful role in the monitoring of treatment and health outcomes in rare diseases where adequate community samples cannot be obtained from population based sampling frames.
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Web survey bibliography - 2011 (358)
- The Validity of Surveys: Online and Offline; 2016; Wiersma, W.
- Computer science security research and human subjects: Emerging considerations for research ethics boards...; 2013; Buchanan, E. A., Aycock, J., Dexter, S., Dittrich, D., Hvizdak, E. E.
- Multiple Sources of Nonobservation Error in Telephone Surveys: Coverage and Nonresponse; 2011; Peytchev, A.; Carley-Baxter, L. R.; Black, M. C.
- Online Questionnaires for Outbreak Investigations; 2011; Parry, A. E.; Johnson, D. R.; Byron-Gray, K.; Raupach, J. C. A.; McPherson, M.
- Inventory of published research: Response burden measurement and reduction in official business statistics...; 2011; Giesen, D. & Snijkers, G. (Eds.), Bavdaz, M., Bergstrom, Y., Gravem, D. F., Haraldsen, G., Hedlin, D...
- Effects of speeding on satisficing in Mixed-Mode Surveys; 2011; Bathelt, S., Bauknecht, J.
- Using Research-Based Practices to Increase Response Rates of Web-Based Surveys; 2011; Perkins, R. A.
- Using break-offs in web interviews for predicting web response in mixed mode surveys; 2011; Beukenhorst, D.
- Web panels in Slovenia; 2011; Lenar, J.
- Traditional and non-traditional treatments for autism spectrum disorder with seizures: an on-line survey...; 2011; Frye, R. E., Sreenivasula, S., Adams, J. B.
- Understanding the new digital divide—A typology of Internet users in Europe; 2011; Brandtzæg, P.B.; Heim, J.; Karahasanoviæ, A.
- Patients’ attitudes toward side effects of antidepressants: an Internet survey; 2011; Kikuchi, T., Uchida, H., Suzuki, T., Watanabe, K., Kashima, H.
- Web-based or paper-based surveys: a quandary?; 2011; Bennett, L., Sid Nair, C.
- Refining the Total Survey Error Perspective; 2011; Smith, T. W.
- ELIPSS: Étude Longitudinale par Internet Pour les Sciences Sociales; 2011; Legleye, S., Lesnard, L.
- Less questions, more data: Revitalizing the european currency in single source affluent audience measurement...; 2011; Hartman, H.
- Linking website exposure data to survey data: A single-source solution; 2011; Krahn, J., Landi, J., Melton, E.
- Inference in surveys with sequential mixed-mode data collection; 2011; Buelens, B., van der Brakel, J.
- Using a Probability-based Online Panel to Survey American Jews; 2011; Wright, G., Phillips, B. T., Tobias, J., Peugh, J., Semans, K.
- Choice of Content Presentation Mode in Web-Based Survey Administration; 2011; Osborn, L., Mansfield, W., Ramirez, C. M., Lacey, J. N., etc.
- Seasonal Yield Variation and Related Response Patterns in Address-based Mail Samples; 2011; DiSogra, C., Hendarwan, E.
- Gender-specific on-line shopping preferences; 2011; Ulbrich, F., Christensen, T., Stankus, L.
- Mixing modes in the LFS - Computer-assisted, cost effective and respondent friendly; 2011; Koerner, T., van der Valk, J.
- Peanuts and Monkeys: Incentivisation and engagement in online access panels; 2011; Marks, B.
- Establishing Cross-National Equivalence of Measures of Xenophobia: Evidence from Probing in Web Surveys...; 2011; Braun, M., Behr, D., Kaczmirek, L.
- Methodological challenges in the use of the Internet for scientific research: Ten solutions and recommendations...; 2011; Reips, U.-D., Buchanan, T., Krantz, J. H., McGrawn, K.Reips, U.-D.
- Search and email still top the list of most popular online activities; 2011; Purcell, K.
- Using Internet in Stated Preference Surveys: A Review and Comparison of Survey Modes; 2011; Lindhjem, H., Navrud, S.
- On the experience and evidence about mixing modes of data collection in large-scale surveys where the...; 2011; Dex, S., Gumy, J.
- Survey Gamification: Old Wine in New Bottles?; 2011; Baker, R. P.
- The Game Experiments: Researching how gaming techniques can be used to improve the quality of feedback...; 2011; Sleep, D., Puleston, J.
- Statistical Estimation of Word Acquisition With Application to Readability Prediction; 2011; Kidwell, P., Lebanon, G., Collins-Thompson, K.
- What is Probit; 2011
- Voice-of-the-customer marketing: A revolutionary 5-step process to create customers who care, spend,...; 2011; Roman, E.
- User agent; 2011
- Unpublisihed internal Google report on break off rates by device type; 2011; Callegaro, M.
- Toward wiser public judgment; 2011; Yankelovich, D., Friedman, W.
- The impact of cookie deletion on site-server and ad-server metrics in Australia. An empirical comScore...; 2011
- The changing role of address-based sampling in survey research; 2011; Iannacchione, V. G.
- State of mobile measurement; 2011; Gluck, M.
- Some issues in the application of latent class models for questionnaire design; 2011; Biemer, P. P., Berzofsky, M.
- Self-administered mobile surveys; 2011; Bosnjak, M.
- SDSC Announces scalable, high-performance data storage cloud; 2011
- Ratings and audience measurement; 2011; Napoli, P. M.
- Randomized response models in survey sampling. Randomized response models; 2011; Hussain, Z.
- Online survey research: Findings, best practices, and future research. Report prepared for the Advertising...; 2011; Vannette, D.
- Online survey research: Findings, Best practices, and future research; 2011
- New Esomar survey on use of cookies and tracking technologies; 2011
- Mobile, webmail, desktops: Where are we viewing email now?; 2011
- Measuring americans' issue priorities. A new version of the most important problem question reveals...; 2011; Yeager, D. S., Larson, S. B., Krosnick, J. A., Tompson, T.